The Changing Locus of Health Data Production and Use: Patient-Generated Health Data, Observations of Daily Living, and Personal Health Information Management

Abstract: Despite the growing attention of researcher, healthcare managers and policy makers, data gathering and information management practices are largely untheorized areas. In this work are presented and discussed some early-stage conceptualizations: Patient-Generated Health Data (PGHD), Observations of Daily Living (ODLs) and Personal Health Information Management (PHIM). As I shall try to demonstrate, these labels are not neutral rather they underpin quite different perspectives with respect to health, patient-doctor relationship, and the status of data.